Abstract
OBJECTIVE: To explore the experiences, coping styles, and support preferences of male rheumatoid arthritis (RA) patients. METHODS: Six focus groups comprised 22 men with RA. Transcripts were analyzed using inductive thematic analysis. RESULTS: Three overarching themes describe the experiences, coping styles, and support preferences of men with RA. In "challenges to masculinity," the men described a "reduction in strength and abilities," which can lead to loss of independence, "challenges to masculine identity and role," and "loss of power and control." Coping by "getting through life with RA" meant dealing with RA by "just getting on with it," "information seeking," engaging in "destructive behaviors," and "withdrawing socially." Preferred "sources of support" tended not to include friends, as they were perceived to lack understanding or support. For acceptable support the men reported a preference for information-giving sessions rather than a discussion group, but there was no agreement on whether these should be mixed-sex or men only, or who should run the sessions. CONCLUSION: Male patients reported a range of coping styles and support preferences to address their experiences of living with RA, many of which may not be shared with women. Further research is needed to investigate whether these findings exist in a larger sample and whether the support preferences of men with RA are broadly different from those of women with RA to decide whether there is a clinical need to design a service for the potentially different needs of men.
More Information
Identification Number: | https://doi.org/10.1002/acr.22951 |
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Status: | Published |
Refereed: | Yes |
Uncontrolled Keywords: | Humans, Arthritis, Rheumatoid, Focus Groups, Adaptation, Psychological, Health Knowledge, Attitudes, Practice, Age Factors, Sex Factors, Health Status, Qualitative Research, Cost of Illness, Social Support, Needs Assessment, Adult, Aged, Middle Aged, Health Services Needs and Demand, Patient Acceptance of Health Care, England, Male, Muscle Strength, Masculinity, Patient Preference, Adaptation, Psychological, Adult, Age Factors, Aged, Arthritis, Rheumatoid, Cost of Illness, England, Focus Groups, Health Knowledge, Attitudes, Practice, Health Services Needs and Demand, Health Status, Humans, Male, Masculinity, Middle Aged, Muscle Strength, Needs Assessment, Patient Acceptance of Health Care, Patient Preference, Qualitative Research, Sex Factors, Social Support, 1103 Clinical Sciences, 1701 Psychology, |
Depositing User (symplectic) | Deposited by White, Alan |
Date Deposited: | 23 Oct 2017 12:50 |
Last Modified: | 11 Jul 2024 01:48 |
Item Type: | Article |
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